Chronic Illness Caregiver

In the following Q&A, Alice Poulin, LCPC, CCS, Clinical Supervisor of Adult Inpatient Services at Northern Light Acadia Hospital offers direction for those who have become caregivers of a loved one with a chronic illness.

How can I take care of my own mental health while also supporting someone with a chronic illness?

Taking care of your own mental health while supporting somebody with a chronic illness is important. Focus on spending time doing something that sparks joy for yourself every day. If you still feel like her mental health is struggling, seek support through friends, your EAP, a therapist, or your family.

What are some effective communication strategies for discussing the illness and its impact with my loved one?

Kind, open, and compassionate communication strategies can help with honest and supportive communication.

How can I balance my own needs and responsibilities with those of the person I'm caring for?

Ask for help! Don’t hesitate to seek support through natural supports, friends, and professionals. Many communities have respite care or support groups specifically for caregivers.

Are you aware of any support groups or resources available for caregivers like me?

Many churches provide caregiver support groups. NAMI (National Alliance on Mental Health) is a great resource to utilize as a caregiver. Eastern Area Agency on Aging offers informational assistance, caregiver respite as well as caregiver support groups.

What are some signs of burnout, and how can I prevent or manage it?

Some early warning signs of burnout are lack of empathy and exhaustion. Having self-awareness and recognizing these early warning signs and pulling yourself back allows you to refocus on yourself and your wellness. You can have somebody fill in 4 blocks of time (i.e. 3 or 4 hours) every Tuesday afternoon and leave during that time for errands, coffee, a movie, etc.

How can I manage feelings of guilt or frustration that may come up while caregiving?

These feelings are normal and try to accept them. Effective ways of managing these feelings can include speaking with loved ones, confiding with friends or seeking support through your clergy or therapist.

What are some practical ways to help my loved one manage their illness, such as medication management or symptom tracking?

Keep a log for symptom tracking - track by day and time. Use a medication organizer for a medication set up for 1-2 weeks.

How can I navigate changes in our relationship dynamics because of the illness?

Having an open and honest conversation about the shift in dynamic can help both parties to acknowledge it rather than resist it. Acknowledging the shift allows you to move forward and find new ways to relate to each other.

What are some strategies for dealing with family members or friends who may not understand the situation or offer support?

Avoiding feelings of blame or judgement of these people. Instead, focus on expressing your needs and providing education to them about the illness. If you are experiencing resistance, seek support elsewhere!

How can I maintain a sense of hope and optimism in the face of the challenges that come with chronic illness?

Nurture your own wellbeing, focus on what you can control, set realistic goals, staying connected with others, find meaning in your life and seeking therapeutic support.

Anything else you would add to assist a caregiver in managing their mental health?

Don’t be afraid to set boundaries. Finding intentional time to focus on yourself will inevitably help those who you care for as well.